I am sharing the love for my very own daughter Zayla Maree Green who passed away with a rare nongenetic disease, Sturge Weber Syndrome. Zay lived for 2 years and 10 months, and her syndrome has only been seen as severe as hers twice in the world!! Zay or Biz as we called her had a life expectancy of 10 years, but with her long hospital stays passed away from klepsis, a bug she caught in hospital. Zayla had severe epilepsy, she couldn't walk ortalk, was completely peg fed, had a mental delay and didn't progress from 5months old, Zay went blind and had a birthmark on 80% of her body, with larger limbs on her left side! Despite all this, she was loved incredibly and we feel honored to have become first-time parents at just 19 and 20 years old to an angel who made us see life differently Although it seems like forever ago, and then some days just yesterday we are reminded every single day, when we think of her just how lucky we are to be here, walking, talking, breathing. In my time with Zay I learnt "to love with everything I have, hold my family & friends close, don't take life to seriously- shit is going to happen, how amazing my husband is, not to take a single giggle, step, kiss, cuddle, handhold, with my boys for granted and to remember how lucky we are to be here breathing!
(To read more about beautiful Zayla and her amazing family head on over to their page and show them some love)
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